{"id":128335,"date":"2025-05-13T09:24:57","date_gmt":"2025-05-13T07:24:57","guid":{"rendered":"https:\/\/radiotordera.cat\/radio\/?p=128335"},"modified":"2025-05-13T09:25:00","modified_gmt":"2025-05-13T07:25:00","slug":"lescola-vedruna-organitza-diumenge-la-3a-caminada-solidaria-per-recaptar-fons-per-a-la-sindrome-coffin-siris","status":"publish","type":"post","link":"https:\/\/radiotordera.cat\/radio\/128335\/","title":{"rendered":"L\u2019escola Vedruna organitza diumenge la 3a Caminada Solid\u00e0ria per recaptar fons per a la s\u00edndrome Coffin-Siris"},"content":{"rendered":"\n<h2 class=\"wp-block-heading\">L\u2019activitat \u00e9s oberta a tota la ciutadania i l\u2019objectiu d\u2019aquest any \u00e9s recaptar fons per una malaltia minorit\u00e0ria que necessita visibilitat i recursos. Inclour\u00e0 dos recorreguts, activitats familiars i una botifarrada<\/h2>\n\n\n\n<p>L\u2019escola Vedruna Tordera celebrar\u00e0 el 18 de maig la 3aCaminada Solid\u00e0ria. Enguany, l\u2019objectiu \u00e9s recaptar fons per a l\u2019Associaci\u00f3 Espanyola S\u00edndrome Coffin-Siris. L\u2019esdeveniment t\u00e9 com a objectiu \u201cpromoure la solidaritat i la consci\u00e8ncia social a trav\u00e9s d\u2019una activitat saludable i participativa\u201d. Tots els beneficis aniran destinats \u00edntegrament a la investigaci\u00f3 i suport de les persones afectades per la s\u00edndrome de Coffin-Siris, una malaltia minorit\u00e0ria que necessita visibilitat i recursos.<\/p>\n\n\n\n<p>La sortida es far\u00e0 a les 8:30 h des de la pista de Sant Andreu, amb la recollida de dorsals a partir de les 8 h del mat\u00ed. Els participants podran escollir entre dos recorreguts de diferents exig\u00e8ncies, un de 5 km i un altre de 8 km.<\/p>\n\n\n\n<p>Les inscripcions es poden fer de manera anticipada a trav\u00e9s del web de l\u2019escola per un preu de 8 euros. Tamb\u00e9 hi haur\u00e0 la possibilitat d\u2019inscriure\u2019s presencialment el mateix dia, amb un cost de 10 euros. El director d\u2019Educaci\u00f3 Infantil de Vedruna Tordera, David Fern\u00e1ndez, avan\u00e7a els canvis respecte a les edicions anteriors.<\/p>\n\n\n\n<figure class=\"wp-block-audio\"><audio controls src=\"https:\/\/radiotordera.cat\/radio\/wp-content\/uploads\/2025\/05\/david-fernandez-novetats.mp3\"><\/audio><figcaption class=\"wp-element-caption\">David Fern\u00e1ndez novetats<\/figcaption><\/figure>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\u201cLes 100 primeres inscripcions optaran a un sorteig especial\u201d<\/p>\n<\/blockquote>\n\n\n\n<p>En finalitzar la caminada, els assistents gaudiran d\u2019una botifarrada, m\u00fasica, activitats l\u00fadiques per a totes les edats i diversos obsequis. La s\u00edndrome de Coffin-Siris \u00e9s una malaltia gen\u00e8tica rara que provoca retard en el desenvolupament, dificultats intel\u00b7lectuals i trets f\u00edsics caracter\u00edstics, com la manca d\u2019ungles en el cinqu\u00e8 dit.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>L\u2019activitat \u00e9s oberta a tota la ciutadania i l\u2019objectiu d\u2019aquest any \u00e9s recaptar fons per una malaltia minorit\u00e0ria que necessita visibilitat i recursos. Inclour\u00e0 dos recorreguts, activitats familiars i una botifarrada L\u2019escola Vedruna Tordera celebrar\u00e0 el 18 de maig la 3aCaminada Solid\u00e0ria. Enguany, l\u2019objectiu \u00e9s recaptar fons per a l\u2019Associaci\u00f3 Espanyola S\u00edndrome Coffin-Siris. L\u2019esdeveniment t\u00e9 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":128337,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[40],"tags":[457,139,840,163,458,215,407,659,475],"class_list":{"0":"post-128335","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-esports","8":"tag-caminada","9":"tag-escola","10":"tag-esport-torderenc","11":"tag-esports","12":"tag-marxa","13":"tag-show","14":"tag-show-esports","15":"tag-solidaria","16":"tag-vedruna"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>L\u2019escola Vedruna organitza diumenge la 3a Caminada Solid\u00e0ria per recaptar fons per a la s\u00edndrome Coffin-Siris - R\u00e0dio Tordera<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/radiotordera.cat\/radio\/128335\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019escola Vedruna organitza diumenge la 3a Caminada Solid\u00e0ria per recaptar fons per a la s\u00edndrome Coffin-Siris - R\u00e0dio Tordera\" \/>\n<meta property=\"og:description\" content=\"L\u2019activitat \u00e9s oberta a tota la ciutadania i l\u2019objectiu d\u2019aquest any \u00e9s recaptar fons per una malaltia minorit\u00e0ria que necessita visibilitat i recursos. Inclour\u00e0 dos recorreguts, activitats familiars i una botifarrada L\u2019escola Vedruna Tordera celebrar\u00e0 el 18 de maig la 3aCaminada Solid\u00e0ria. Enguany, l\u2019objectiu \u00e9s recaptar fons per a l\u2019Associaci\u00f3 Espanyola S\u00edndrome Coffin-Siris. 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